Our Mission: To find effective treatments for PMD and increase awareness about this degenerative disease.

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Recent Updates

Jul09

CFRB 1010 – Radio Interview – July 9 2014

Jul08

National Post – July 9 2014

     

Jun28

Graduation: The Beginning of Round 2

Posted on June 26, 2014 by Marcy White in Yes We Can I was looking forward to writing about Jacob’s graduation ceremony. I wanted to recount the wonderful hour that it took for all 54 kids to receive their diplomas. I planned to describe the feeling of pride bursting out of my chest as my son was wheeled down the […]

Jun27

Wanted For September 2014:

Wanted:  A school placement for Jacob that is not afraid of a boy in a wheelchair. A school that is interested in treating him as a person, with dignity and respect. Qualifications: – Empathetic principal, willing to put a student’s needs before union policies. – Creative, energetic teacher who can see past his physical limitations and program […]

Jun17

Truth:

Jun08

Will kids make fun of him?

“The kids in his class will make fun of him.” I sat there stunned, until I regained my composure, caught my breath and calmly stated: “then maybe this is not the right school for Jacob.” The setting: the intake meeting at the new school Jacob is registered to attend in September The attendees: the principal […]

Jun01

Jake Made The Best Roasted Marshmallow!

Jun01

My Son is My Greatest Teacher

Posted in Yes We Can on Clubmom.ca May 29, 2014 I had no idea how my safe and insular world would be tossed, shaken and dropped unceremoniously on its head with the first breath of my first child in May 2002. It was Jacob’s birth and early struggle for life that led me to my […]

May13

THE CAREGIVERS’ LIVING ROOM A Blog by Donna Thomson

Tuesday, 13 May 2014 The Boy Who Can by Marcy White: An Inspiring Book Review for Disability Parents Marcy White was like just about every other young mother-to-be.  She was excited, nervous, happy and brimming with the anticipation of seeing her new baby boy. But when her baby boy Jacob was born, something didn’t seem […]

May12

A Mother Who Imagines Past a Son’s Limitations

From Jewish Tribune APRIL 28, 2014 Marcy White’s world was turned upside down after her son Jacob was born. Marcy White and her husband Andrew Trossman were happily awaiting the arrival of their first child in 2002. But when Jacob was born, their lives turned upside down. Jacob was born with paralyzed vocal cords and […]

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