Our Mission: To find effective treatments for PMD and increase awareness about this degenerative disease.

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Recent Updates

Nov30

Jacob in the Hospital – It Takes a Village

  By Marcy White November 25, 2014 The most terrifying words I’ve ever heard were spoken 21 days ago, shortly after I pressed the red Nurse Call button beside my son’s bed in his hospital room. It was around 9 a.m. on the second morning of Jacob’s recent hospital admission for breathing-related issues. I was […]

Oct30

Felix the Golden Retriever – A Boy’s Best Friend

By Marcy White October 30, 2014 I am, and always have been, a dog person. My kids and my husband were not. When I wold stop to pet a dog, my husband would cringe as I let the dog lick my hand or jump on me. My daughters would stand off to the side, far […]

Sep29

First Day of Middle School

First Day of Middle School – Two Perspectives By Marcy White September 26, 2014   Nathan – First Day of Middle School – Morning Routine On the first day of Middle School, Nathan rolls out of bed, brushes his teeth and puts on the new shirt and pants. He picks up his backpack, filled last […]

Jul09

CFRB 1010 – Radio Interview – July 9 2014

Jul08

National Post – July 9 2014

     

Jun28

Graduation: The Beginning of Round 2

Posted on June 26, 2014 by Marcy White in Yes We Can I was looking forward to writing about Jacob’s graduation ceremony. I wanted to recount the wonderful hour that it took for all 54 kids to receive their diplomas. I planned to describe the feeling of pride bursting out of my chest as my son was wheeled down the […]

Jun27

Wanted For September 2014:

Wanted:  A school placement for Jacob that is not afraid of a boy in a wheelchair. A school that is interested in treating him as a person, with dignity and respect. Qualifications: – Empathetic principal, willing to put a student’s needs before union policies. – Creative, energetic teacher who can see past his physical limitations and program […]

Jun17

Truth:

Jun08

Will kids make fun of him?

“The kids in his class will make fun of him.” I sat there stunned, until I regained my composure, caught my breath and calmly stated: “then maybe this is not the right school for Jacob.” The setting: the intake meeting at the new school Jacob is registered to attend in September The attendees: the principal […]

Jun01

Jake Made The Best Roasted Marshmallow!

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