Our Mission: To find effective treatments for PMD and increase awareness about this degenerative disease.
A few weeks ago, Jake had a dentist appointment. Getting my son into and out of a car is no easy feat since we do not have a wheelchair accessible van. What I do is wheel him from the house to the car, lift his 54 pound body out of his wheelchair, carefully supporting his [...]
Once upon a time there was a little boy named Jacob. Jacob had 2 cats that he loved but was terrified of all other animals. One of the only ways to stop Jacob’s incessant crying and screaming was to follow his cats around the house and always stay within sight of them. Hours and hours [...]
Last weekend I received the sweetest email from a friend telling me that her kids set up a lemonade stand and all proceeds were donated to curepmd! Thank you so much Al, Kate, Jack and Mia!!!
Please watch, vote and spread the word about this amazing movie about Jacob. It was created by Danielle, a life guard at the pool where Jacob swims. It was entered into a contest to “bring visibility to disability”. It’s called Jacob – The Boy Who Can. Is that not the most appropriate way to describe [...]
Jacob has been attending the same after-school Hebrew program for the past 5 years. A few weeks ago, each class performed a song for the families of the students. Jacob’s grade 5 class created their presentation on their own. The following video shows how these kids worked together so that Jacob could participate using his [...]
Close Encounters with Science: Picks Jacob Speaks by Marcy White On December 3, 2012 6:29 AM It took eight years but I never gave up. Like most parents, I eagerly anticipated my child’s first words. Unlike most parents, I was told by doctors that my son would never talk. Despite Jacob’s many health and development [...]
Mom’s advocacy pays off: disabled boy attends class Frances Kraft, Staff Reporter, The Canadian Jewish News, Friday, November 2, 2012 TORONTO — Two weeks ago, on Oct. 20, 10-year-old Jacob Trossman began to attend Elkhorn Public School three full days a week, after seven months of advocacy [...]
I never doubted I would write this post. I am astounded, though, that it took so long to get here. Jacob completed his first week at Elkhorn! It was the hardest battle I’ve ever fought, but it was worth it because he is exactly where he should be. Being a parent is hard but being [...]
Here is a great presentation from a woman who has proven her doctors wrong. Not only did she learn how to walk, she broke records at the Paraolympic Games in 1996. She explains how the words doctors and teachers use to describe and label kids can have a positive (or negative) impact on how much [...]
Ways To Get Involved