Our Mission: To find effective treatments for PMD and increase awareness about this degenerative disease.

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Meet Jacob…

Recent Updates

Apr06

Jacob’s Race to Victory, you can help!

Next month is the National Mobility Awareness Month in the US & Canada.  There’s an organization, NMEDA, that will give away 3-4 wheelchair accessible vehicles to the winners of their annual challenge.  First, contestants must get as many votes as possible from friends, family, coworkers etc. as part of raising awareness.  In fact, voters can […]

Apr05

My introduction to Special Needs Parenting – written for Clubmom.ca

My Introduction to Special Needs Parenting Posted on April 4, 2014 for ClubMom.ca by Marcy White The world was a very different place when I was catapulted into the arena of special needs parenting. Almost 12 years ago, following a wonderfully uneventful pregnancy, I gave birth to a full term, six pound nine ounce baby […]

Apr05

Marcy Interviewed on Daytime Toronto

Watch Marcy on Daytime Toronto   p.s. Don’t forget to vote for Jacob here

Apr04

Huffington Post April 3 2014

11 Things Parents With Children In Wheelchairs Have To Deal With, Huffington Post April 3 2014

Apr04

CJN Article April 3 2014

Mother celebrates her son’s triumphs, CJN April 3 2014

Apr04

The Boy Who Can, the Jacob Trossman Story on CBC Radio

The Boy Who Can

Mar30

Jacob is my hero

I nominated Jacob as my hero in an international contest run by the National Mobility Equipment Dealers Association (NMEDA). It’s a contest that relies on the assistance of friends, family and strangers because we need people to vote for Jacob. There are currently over 700 nominees and the top 10% who get the most votes […]

Mar09

Why did the crayon cry?

Tom Chau, the man who created Jake’s iPod for him to communicate, was named an Everyday Hero on Global TV this past Friday. Check out Jake’s latest tv appearance. PS: Tom wrote the foreward in The Boy Who Can: The Jacob Trossman Story. Everyday Hero – March 7 2014  

Dec05

A Little Understanding Makes A Big Difference

A few weeks ago, Jake had a dentist appointment. Getting my son into and out of a car is no easy feat since we do not have a wheelchair accessible van. What I do is wheel him from the house to the car, lift his 54 pound body out of his wheelchair, carefully supporting his […]

Jul18

Welcome home Felix!

Once upon a time there was a little boy named Jacob. Jacob had 2 cats that he loved but was terrified of all other animals. One of the only ways to stop Jacob’s incessant crying and screaming was to follow his cats around the house and always stay within sight of them. Hours and hours […]

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