Our Mission: To find effective treatments for PMD and increase awareness about this degenerative disease.

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Our blog covers a wide variety of PMD-related topics - if you have a story idea or want to contribute an article, please get in touch!

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Mar28

Listening to Those Who Cannot Speak

My son Jacob cannot speak. I am his voice. I am his biggest advocate and will fight as hard as I can to get him what he needs. My ongoing challenge is convincing people that Jacob understands what goes on around him and reminding people that there is a person inside his physically challenged twelve […]

Mar28

Jacob’s Disease and the Impact on our Family

I hate PMD. On March 21, 2003, I was told that Pelizaeus-Merzbacher disease (PMD) was the cause of Jacob’s assorted medical issues. I’ve hated the disease ever since. When I learned that it is degenerative and would continue to burrow into my son’s brain and nervous system like a voracious mole, until it ate away […]

Nov30

Jacob in the Hospital – It Takes a Village

  By Marcy White November 25, 2014 The most terrifying words I’ve ever heard were spoken 21 days ago, shortly after I pressed the red Nurse Call button beside my son’s bed in his hospital room. It was around 9 a.m. on the second morning of Jacob’s recent hospital admission for breathing-related issues. I was […]

Oct30

Felix the Golden Retriever – A Boy’s Best Friend

By Marcy White October 30, 2014 I am, and always have been, a dog person. My kids and my husband were not. When I wold stop to pet a dog, my husband would cringe as I let the dog lick my hand or jump on me. My daughters would stand off to the side, far […]

Sep29

First Day of Middle School

First Day of Middle School – Two Perspectives By Marcy White September 26, 2014   Nathan – First Day of Middle School – Morning Routine On the first day of Middle School, Nathan rolls out of bed, brushes his teeth and puts on the new shirt and pants. He picks up his backpack, filled last […]

Jul09

CFRB 1010 – Radio Interview – July 9 2014

Jul08

National Post – July 9 2014

     

Jun28

Graduation: The Beginning of Round 2

Posted on June 26, 2014 by Marcy White in Yes We Can I was looking forward to writing about Jacob’s graduation ceremony. I wanted to recount the wonderful hour that it took for all 54 kids to receive their diplomas. I planned to describe the feeling of pride bursting out of my chest as my son was wheeled down the […]

Jun27

Wanted For September 2014:

Wanted:  A school placement for Jacob that is not afraid of a boy in a wheelchair. A school that is interested in treating him as a person, with dignity and respect. Qualifications: – Empathetic principal, willing to put a student’s needs before union policies. – Creative, energetic teacher who can see past his physical limitations and program […]

Jun17

Truth:

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