Well, it’s a bit more than a week after Nightline aired our story. Jacob is doing much better now that his two ear infections have cleared up. In the past week we’ve had thousands of hits on our website and many, many very encouraging messages, emails etc. A number of people generously donated to the PMD fund at Jacob’s Ladder. Marcy and I have been trying to thank each and every one of you. Thank you for your support and generosity. We will let you know how things proceed with journey to help Jacob and others like him.
In the next couple weeks we hope to get more results from the drug testing. In parallel, we’ve been trying to find a local doctor that would help go through the process to get compassionate access to the experimental drug. This appears to be another challenging hurdle. Any and all suggestions are welcome! We’ll let you know how this progresses.